医学博士Sheila Rustgi:这是一个很有帮助的背景，你知道，你最近在缓解还是你已经缓解了很长一段时间了?但我认为有几个重要的解释可以解释你为什么会有这些症状。一种可能是药物不再起作用，现在有很多药物我们可以通过血液测试来检查，药物的水平是否良好?你产生抗体了吗?这是一个问题，有时候可以通过改变药物剂量来解决。另一个问题是，这真的不是克罗恩病吗?你有肠易激综合症吗?嗯，很多克罗恩病患者，和肠易激综合征也有重叠。所以我认为这很重要，你知道，如果你感觉不舒服，去找你的医生，试着深入调查一下，你知道，这是克罗恩病，还是其他什么病?你能不能用你正在服用的药物做点什么，让它对你更有效? And then I think talking about changing medications would be kind of, um, you know, maybe, maybe not the first choice, if you can avoid it, especially if it was working for you before.
布莱恩·格林伯格:我有过这种感觉，实际上很多次，当你在药物上失败了，你就像，为什么我的身体没有对这种药物做出应有的反应，应该的反应，科学认为应该的反应。我有一个很好的例子。我和我哥哥都有克罗恩病。我弟弟在服用我试过的一种药物，这是他的，这是他的金奖券。是他的药物让他多年来病情有所缓解。我们有相同的基因。我试过那种药，但失败了，而且对它有反应。这对我的身体来说太可怕了。我不认识任何人，我可以和我哥哥更相似，但我失败了。我就想，为什么会这样? So, yeah, it’s hard when your doctor tells you about a medication, tells you about a treatment plan that could, you know, really help you and you kind of get excited and then you start that process. And yeah, sometimes it takes a week. Sometimes it takes four, six weeks, three months and it just doesn’t work. And there is a little bit of fatigue and difficulty when you had such high hopes for something hopefully changing at that point. Especially these days, you know, there are more and more options. So when, when you find an option that at least can keep you under check, you know, I, I like to think about it, you know, there are more bullets in the barrel basically. You know, I, I still have options that I can go through to, you know, keep in my, you know, backstory basically, and just, you know, I, I have options that I can lean back on. So I try to lean on that a little bit, knowing that if something does change and if my current medication were to ever slowly stop working, that I have other options behind me that I’m not, I haven’t exhausted all my resources yet. And I think that’s always good to realize that we’re living in an age where there are so many resources, so many treatment options out now, and there’s so many treatment options that are coming out later on too, in the next two, three, five years that things are headed in a direction where we should, like Marquis said, we’re all gonna find our treatment plan. It’s not science. It’s not, let’s go to option number one and be done. It’s kind of figuring out that option or combination of options that will work with your body and take you to the next step
