被诊断患有慢性疾病，影响到的不仅仅是我一个人。我们确实遇到了一些挑战，但这确实让我们的关系更加牢固。作为一个母亲，一个妻子，带着溃疡性结肠炎生活，在很多方面影响了我。我猜你可以说，一个健康的人没有被诊断出溃疡性结肠炎，你知道，你可以茁壮成长，过着正常的日常生活。所以，对我来说，妈妈看起来总是很疲惫。我总是很累。当我有耀斑的时候，妈妈可能就不能去看你的独奏会了。我晚上可能做不出晚饭了。所以，它影响了我生活的方方面面。我经常为自己感到难过，或者想，为什么这种事会发生在我身上? I have two kids. I’m trying to do the best I can. But literally, my body was fighting itself. And then in my marriage, I’ve been married to my husband now for 12 years. And the funny thing is, sometimes I feel like he didn’t sign up for this. I literally was diagnosed after our one-year anniversary. My husband and I met in college, so we would have fun and, you know, just enjoy life. And then all of a sudden, we get married and then his wife has a chronic illness. And as far as in our relationship, we definitely have some challenge, but it really made our relationship stronger. You know, my husband is my care partner. When I was not able to take the kids to school or pick them up or make dinner, my husband stepped in. So, I really appreciate that, just to have a supportive partner in this journey. Like I said before, being diagnosed with a chronic illness, it affected not just me. Even though my husband and my kids was not officially diagnosed with it, they were diagnosed with it because they still had to help me go on. We had to get through this together. So it’s been challenging, but I feel like it’s just made my family stronger.
