多年来,我从来没有真正知道任何被诊断出患有溃疡性结肠炎。这是一个时间,我只是感到孤独。找一个社区是惊人的。我开始分享我的旅程在社交媒体上的我第一次造口术手术,因为这是一个时间,我只是感到孤独。多年来,我从来没有真正知道任何被诊断出患有溃疡性结肠炎。和最重要的是,与溃疡性结肠炎是一位黑人妇女,没有人在我的家人,没有朋友,没有人,我可以特别相关。所以,告诉我只是分享我的旅程。我发现了一些新面孔,黑色和棕色患有这种疾病。然后当我开始分享我的旅程有很多人与溃疡性结肠炎。我觉得我不需要感到羞耻的感觉了。 I don’t have to be embarrassed anymore because I’m not the only one with this. Living with IBD, I notice, and we notice, that there are some inequities when it comes to IBD. When I had my ostomy surgery, I would receive pamphlets in the mail and the pamphlets where I had to order my supplies the only pictures that I would see was of Caucasian men or women, and everyone was over the age of 60. There’s IBD commercials out there, but you really never really see people of color. It brings us back to the fact that, you know, representation does matter and that, you know, IBD - Crohn’s - colitis, it does not see one particular color, one particular race, like, it affects everyone. It’s been a true blessing to be able to share my journey along with helping others because I truly feel like this is my purpose. For years I struggled, but all of that wasn’t in vain because I now know that it has never really been about me. My purpose now is just to share, help others that are going through this and share my experiences.
